Stigma and global Health: Developing a Research Agenda - An International Conference
September 5 - 7, 2001 Bethesda, Maryland, U.S.A. Bethesda Marriott 5151 Pooks Hill Road
Stigma - illustration
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Updated September 2001

Message from the Conference organizers (click here)



Click on session titles to view Abstracts and Background Papers.  Click on speakers' names to view short biographies.

Wednesday, September 5, 2001     6 p.m. to 9 p.m.
6 - 6:45 p.m. Registration and Welcome Reception
6:45 - 7 p.m. Opening Remarks: Goals of Conference, Expected Outcomes
Gerald T. Keusch, M.D., Fogarty International Center
Steven E. Hyman, M.D., National Institute of Mental Health
Alan I. Leshner, Ph.D., National Institute on Drug Abuse
7 - 7:10 p.m. Conference Overview  Arthur M. Kleinman, M.D., Harvard University
7:10 - 7:30 p.m. Background Paper -  History of Stigma - Stigma, Contagion, Defect: Issues in the Anthropology of Public Health

Abstract Only

Veena Das, Ph.D., Johns Hopkins University
7:30 - 7:50 p.m. Background Paper Abstract - History of Stigma - Stigma, Race and Disease in Twentieth Century America Keith Wailoo, Ph.D., Rutgers University
7:50 - 8 p.m. General Discussion
8 - 8:30 p.m. Keynote Address - 
The Many Stigmas 
of Mental Illness
Kay Redfield Jamison, Ph.D., Johns Hopkins University
8:30 - 9 p.m. Video Documentary - Nkosi Johnson, 
South African 
AIDS Activist - 
Nkosi, A Voice of Africa's AIDS Orphans

Introduction by 
Anant Singh, Videovision Entertainment, 
South Africa

Danny Schechter, M.S., Mediachannel
9 p.m. Adjourn
Thursday, September 6, 2001     7:30 a.m. to 6 p.m.
7:30 - 8 a.m. Registration

Session One:
Background on Stigma Research, Part 1

8 - 8:10 a.m. Introduction Arthur M. Kleinman, M.D., Harvard University
8:10 - 8:30 a.m. Background Paper - 
The Study of Potentially Stigmatizing Conditions: an Epidemiologic Perspective 
Arthur Reingold, M.D.,
University of California at Berkeley

8:30 - 8:50 a.m. Prepared discussants
1. Sylvia Kaaya, M.D., University of Dar es Salaam, Tanzania

2. Maureen Durkin, Ph.D., Dr. P.H., Columbia University
Dr. Durkin's abstract

8:50 - 9:10 a.m. General Discussion
9:10 - 9:30 a.m. Background Paper - 
On Stigma and 
its Public Health Implications

Abstract Only

Bruce Link, Ph.D., Columbia University

9:30 - 9:40 a.m.

Prepared Discussants


1. Linda Richter, Ph.D.University of Natal, South Africa

2. Laraine Glidden, Ph.D., St. Mary's College of Maryland
Dr. Glidden's abstract

9:40 - 10 a.m. General Discussion
10 - 10:30 a.m. Break

Session Two:
Background on Stigma Research, Part 2

10:30 - 10:50 a.m. Background Paper -  Interventions: Research on Reducing Stigma

Abstract only

Mitchell Weiss, M.D., Ph.D., Swiss Tropical Institute, Switzerland
10:50 - 11 a.m. Prepared Discussants
1. Maggie Bangser, M.P.P.M., Women's Dignity Project, Tanzania

2. Julie Pulerwitz, Sc.D., HORIZONS Project / PATH-D.C.
Dr. Pulerwitz's abstract

11 - 11:20 a.m. General Discussion
11:20 a.m. - 12 noon Panel Discussion 
[all Background Paper presenters]
Susan Solomon, Ph.D., Office of Behavioral and Social Science Research, NIH 
12 noon - 12:45 p.m. Box Lunch [provided]

Session Three:
Exemplars of Health-Associated Stigma

12:50 - 1:20 p.m. AIDS Moderator:
Gregory M. Herek, Ph.D., University of California at Davis

1. Suniti Solomon, M.D., YRG Centre for AIDS Research and Education, India
Dr. Solomon's abstract

2. Zhang Konglai, M.D.Peking Union Medical College, China
Dr. Zhang's abstract

1:25 - 1:55 p.m. Epilepsy Moderator:
Joan K. Austin, D.N.S., R.N., F.A.A.N., Indiana University

1. Li Li Min, M.D., Ph.D., UNICAMP, Brazil
Dr. Min's abstract

2. Ann Jacoby, Ph.D., University of Liverpool, UK
Dr. Jacoby's abstract

2 - 2:30 p.m. Schizophrenia Moderator:
Paolo del Vecchio, Substance Abuse & Mental Health Services Administration, Center for Mental Health Services

1. Sing Lee, M.D., Chinese University of Hong Kong, China
Dr. Lee's abstract

2. Pablo Farias, M.D., The Ford Foundation, Mexico

2:35 - 3:05 p.m. Physical Anomalies: Congenital and Acquired 
Nancy Berk, Ph.D., University of Pittsburgh

1. Craniofacial Disorder: 
Todd C. Edwards, Ph.D.
, University of Washington
Dr. Edwards' abstract

2. Paraplegia: Daniel D. Reidpath, Ph.D., Deakin University, Australia
Dr. Reidpath's abstract

3:05 - 3:45 p.m. Break

Session Four:
Two Faces of Stigma: The Complex Role of Stigma in Public Health

3:45 - 4:20 p.m. Alcohol and Drug Abuse Moderator:
Maristela G. Monteiro, M.D., Ph.D., World Health Organization

1.  Sheigla Murphy, Ph.D., Institute for Scientific Analysis
Dr. Murphy's abstract

2. Sharon Wilsnack, Ph.D., University of North Dakota
Dr. Wilsnack's abstract

4:25 - 4:55 p.m. Physical and 
Sexual Abuse
Mary Ellsberg, Ph.D., PATH-DC

1. James Garbarino, Ph.D., Cornell University

2. Gail Wyatt, Ph.D., University of California at Los Angeles

Session Five: 
Impact of the Media

5 - 6 p.m. Health-Associated Stigma and the Media 1.  Bill Lichtenstein, M.S., Lichtenstein Creative Media
Mr. Lichtenstein's abstract

2. Martin Fishbein, Ph.D., University of Pennsylvania
Dr. Fishbein's abstract

Friday, September 7, 2001     8 a.m. to 4 p.m.
8 - 8:10 a.m. Summary of Conference to present Arthur M. Kleinman, M.D., Harvard University

Session Six: 
Stigma, Health, and Society 

8:10 - 8:25 a.m. Moderator's Introduction Gerald T. Keusch, M.D., Fogarty International Center
8:25 - 8:40 a.m. Group Stigma in Population Genetics Partha Majumder, M.D., Ph.D., Indian Statistical Institute, India
8:45 - 9 a.m. Legal Aspects of HIV: The Relationship Between Stigma 
and the Law
(click here for abstract)

Scott Burris, J.D., L.L.D., Temple University
9:05 - 9:20 a.m. Policy and Gender Issues Florence Baingana, M.D., World Bank
9:25 - 9:40 a.m. Alternative Sexualities and Genders in Brazil
(click here for abstract)
Richard G. Parker, Ph.D., Columbia University
9:45 - 10 a.m. "Education is Whitey's Thing"
(click here for abstract)
Carl Bell, M.D., University of Illinois at Chicago and Community Mental Health Council and Foundation

Breakout Sessions

10 -10:10 a.m. Explanation of Panel Format Arthur M. Kleinman, M.D., Harvard University
10:10 - 10:30 a.m.
10:30 - 12:30 p.m. Breakout Sessions
Stigma and... 
Paul A. Gaist, Ph.D., M.P.H., Office of AIDS Research, NIH

Ellen Stover, Ph.D., National Institute of Mental Health

Suniti Solomon, M.D., YRG Centre for AIDS Research and Education, India


Stigma and... 
Moderator: Sandra Cushner-Weinstein, RPT, LCSWC, Children's National Medical Center

Rapporteur: Margaret Jacobs, National Institute of Neuorological Disorders and Stroke  


Stigma and... 
Moderator: Wayne S. Fenton, M.D., National Institute of Mental Health 

Rapporteur: Bernice A. Pescosolido, Ph.D., Indiana University


Stigma and... 
and Drug Abuse
Minda Lynch, Ph.D.
, National Institute on Drug Abuse

Kendall J. Bryant, Ph.D., National Institute on Alcohol Abuse and Alcoholism


Stigma and... 
Physical Anomalies:
Congenital and Acquired 
Patricia Bryant, Ph.D., National Institute of Dental and Craniofacial Research

Coleen Boyle, Ph.D., M.S., Centers for Disease Control and Prevention


Stigma and... 
Population Genetics and 
Group Stigmatization
Kenneth M. Weiss, Ph.D., Pennsylvania State University

Rapporteur: Jean E. McEwen, J.D., Ph.D., National Human Genome Research Institute

12:30 - 1:45 p.m. 
Box Lunch [provided]
1:45 - 3:45 p.m. Rapporteur Reports, Discussion
[All participants regroup in main conference room to discuss break-out session conclusions.]
3:45 - 4 p.m. Conclusion


Next Steps

Gerald T. Keusch, M.D., Fogarty International Center

Arthur M. Kleinman, M.D., Harvard University 

4 p.m. Adjourn  
To the top of the page

If you have any questions about the Conference, please contact:

Kathleen Michels, Ph.D.
Program Director
Fogarty International Center (
National Institutes of Health
Telephone: 301-496-1653
Fax: 301-402-0779

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